Hope Foundation - Creating an awareness of Lupus, Sickle Cell and Arthritis

Living with Lupus

  • I was diagnosed with systemic lupus. Are there any do's or don'ts with regard to: +

    Diet - There is no such thing as a lupus diet. People with lupus should consider following a diet that is Read More
  • Flares. How can I tell if my lupus is active? +

    When a lupus flare occurs, people will usually notice a return of the symptoms they experienced previously, but sometimes they Read More
  • When should I call the Doctor? +

    You should call the doctor about any change in symptoms or worsening of your lupus as soon as possible. You Read More
  • How long will a flare last? How long will a remission last? +

    There is no way of predicting how long a flare will last when it comes, nor is there any way Read More
  • I've had lupus for 2 years and haven't had a remission yet. Is this possible? +

    Yes. Lupus takes a highly variable course. Some people will have a course where their lupus flares-up and then simmers Read More
  • What can I expect in the future? Will I be able to have a family? +

    Unless there is moderate to severe organ involvement or if a person must take immunosuppressive/immunomodulating medications that would place the Read More
  • Will I be able to continue working full-time? +

    Many people who have lupus are able to continue working full-time. However, since lupus affects people to varying degrees there Read More
  • Will I live long enough to see my children grow up? +

    The majority of people living with lupus today, in fact 80-90% of them, can expect to live a normal lifespan Read More
  • Will I become crippled and end up in a wheelchair? +

    People are frequently concerned that the arthritis associated with lupus will result in crippling deformities. Lupus arthritis generally does not Read More
  • Is there anything I can do to alleviate the pain when the pills don't seem to work and I can't get in to see the doctor for a few days? +

    Some people find relief from heat, some people find relief from cold. Others find that if they can find a Read More
  • I have heard that dental fillings may trigger lupus. Is there anything to this? +

    At the present time, we do not have any scientific data that indicates that dental fillings may act as a Read More
  • I have heard that hair dyes may trigger flares in lupus. Does this mean I should stop dying my hair? +

    One study indicated an association between the use of hair dyes and lupus symptoms, but subsequent studies found no association Read More
  • Can lupus cause memory problems? +

    At some point during the course of their lupus, up to 50% of lupus patients describe feelings of confusion, fatigue, Read More
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Upcoming Events

August 26, 2018
Walk for Lupus
July 23, 2018
Pain Management Seminar for Sickle Cell
October 28, 2018
Voices for Lupus Concert



Contact Us

Please contact us at any of the following
Tel: (246) 437-8781
Email: hope@caribsurf.com